A study of the Severity of Disability and Nutritional status of people with disabilities and Quality of Life among people with physical disabilities and primary caregivers of people with disabilities in Kaniyambadi Block

Nancy Angeline, G (2015) A study of the Severity of Disability and Nutritional status of people with disabilities and Quality of Life among people with physical disabilities and primary caregivers of people with disabilities in Kaniyambadi Block. Masters thesis, Christian Medical College, Vellore.

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Abstract

BACKGROUND: Disability is a complex, multidimensional concept which affects all domains of life. Caregivers of people with disabilities face strains that influence their health and quality of life. Our study aims to assess the quality of life of people with disabilities and their caregivers. Severity of disability and nutritional status of people with disabilities was also assessed. METHODS: A cross-sectional study was done among 300 persons with disabilities and 300 primary caregivers. Participants with disabilties were administered WHO QOL-BREF, WHO DAS, ICF and MNA scale. Primary caregivers were administered WHO QOL-BREF. Prevalence of poor quality of life was assessed. Chisquare tests and odds ratios were calculated for factors affecting the quality of life and regression analysis was done to adjust for confounders. Two focus group discussions were conducted, one among the persons with disabilities and another among the primary caregivers to complement the findings of the quantitative part of the study. RESULTS: Among the 203 people with physical disabilities aged 18 years and above, 37.5% self rated their quality of life as poor. Factors which were significantly associated with poor quality of life in physical domain among them were non congenital causes of disability (AOR 3.025, 1.086-8.425) and severe disability (DAS score ≥45.21) (AOR 3.319, 1.585 – 6.948). Being single (AOR 3.253, 95% CI 1.474-7.181) and lower socio-economic status (AOR 4.092, 1.55-10.804) were significantly associated with poor quality of life in social domain of the people with physical disabilities. Being unemployed (AOR 2.404, 95% CI 1.181-4.894) was significantly associated with environmental domain of quality of life people with them. Among the 300 primary caregivers of people with disabilities, 25.7% reported poor quality of life. Caregiver being elderly (AOR1.764, 95% CI 1.007–3.088) and severe disability (AOR2.042, 95% CI 1.258-3.314) were associated with poor quality of life in physical domain among the caregivers. Caregiver being a parent or child (AOR1.804, 95% CI 1.075- 3.027) and lower socio-economic status (AOR 2.076, 95% CI 1.64-3.705) were associated with poor quality of life in psychological domain and female caregivers (AOR 4.317, 95% CI 2.005-9.294) were significantly associated with poor quality of life in social domain. Among the persons with disabilities 60% were either malnourished or were at risk for malnutrition. Being single (AOR 1.831, 95% CI 1.013-3.311), having more than one disability (AOR 2.127, 95% CI 1.093-4.136) and severe disability (AOR 6.106, 95% CI 3.194-11.67) were significantly associated with malnutrition and being at risk for malnutrition. CONCLUSIONS: The quality of life of persons with disabilities and their caregivers is by and large poor and socio-economic and employment status are factors which can improve their quality of life. More than half of the persons with disabilities are either at risk of malnutrition or malnourished. Nutritional assessment and intervention should be an essential part of rehabilitation.

Item Type: Thesis (Masters)
Uncontrolled Keywords: Disability ; Persons with disabilties ; Quality of life ; Primary caregivers ; Nutritional status ; Severity of disability.
Subjects: MEDICAL > Community Medicine
Depositing User: Punitha K
Date Deposited: 06 May 2018 11:39
Last Modified: 06 May 2018 11:39
URI: http://repository-tnmgrmu.ac.in/id/eprint/7537

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