The level of perceived family burden, coping strategies and psychological well-being among the primary caregivers of chronic schizophrenia patients in a selected hospital at Madurai,Tamilnadu.

Sasikala, G (2010) The level of perceived family burden, coping strategies and psychological well-being among the primary caregivers of chronic schizophrenia patients in a selected hospital at Madurai,Tamilnadu. Masters thesis, Matha College of Nursing, Manamadurai.

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Abstract

A descriptive study to assess the level of perceived family burden, coping strategies and psychological well-being among the primary caregivers of chronic schizophrenia patients in a selected hospital at Madurai, Tamilnadu was conducted in partial fulfillment of the requirement for the award of a degree of Master of Science in Nursing under the TamilNadu Dr. M.G.R.Medical University, Chennai. Objectives of the study were:- 1. To assess the level of perceived family burden among the primary caregivers of chronic schizophrenia patients. 2. To assess the level of coping strategies among the primary caregivers of chronic schizophrenia patients. 3. To assess the level of psychological well-being among the primary caregivers of chronic schizophrenia patients. 4. To find the interrelationship among the level of perceived family burden, coping strategy and the psychological well-being among the primary caregivers of chronic schizophrenia patients. 5. To find out the association between the perceived family burden and selected demographic variables (such as age, gender, religion, marital status, education, occupation, income, relationship with the patient, and duration of illness). 6. To find out the association between coping strategies and selected demographic variables (such as age, gender, religion, marital status, education, occupation, income, relationship with the patient, and duration of illness). 7. To find out the association between psychological well-being and selected demographic variables (such as age, gender, religion, marital status, education, occupation, income, relationship with the patient, and duration of illness of the care receiver). The study was based on the ‘Stress, Coping and Adaptation Model’ by Lazarus & Folkman,(1984). Four hypotheses were tested. 1. There will be a interrelationship among the level of perceived family burden, coping strategies and the psychological well-being among the primary caregivers of chronic schizophrenia patients. 2. There will be a significant association between the level of perceived family burden and selected demographic variables. 3. There will be a significant association between the level of coping strategies and selected demographic variables. 4. There will be a significant association between the level of psychological well-being and selected demographic variables. The aim of the research was to assess the level of perceived family burden, coping strategies and psychological well-being among the primary caregivers of chronic schizophrenia patients. A descriptive research design was used for the study. The study population consisted of 100 primary caregivers of chronic schizophrenia patients who were attending the outpatient department of M.S.Chellamuthu Trust & Research Foundation, Madurai. A purposive sampling technique was used to select the samples. In order to collect the data, the tool comprised of socio-demographic variables, Burden Assessment Schedule of SCARF (BASS,1995), Coping Checklist (CCL, Rao, Subbakrishna and Prabhu 1989) and Psychological Well-Being Questionnaire (Bhogle and Jaiprakash, 1995) – to assess the level of perceived family burden, coping strategies and psychological well-being. The pilot study was carried out on 10 primary caregivers of chronic schizophrenia patients who fulfilled the sampling criteria. The data collected during the data collection period were analyzed by means of descriptive and inferential statistics. The findings of the study have been discussed in terms of objectives and hypotheses for the study. Major findings of the study were:- The result revealed that among the primary caregivers 48% are having mild burden, 36% of them are having moderate burden and 16% of them having severe burden. The report about the level of coping strategies among the primary caregivers 49% are having moderate level of coping strategies, 42% of them are having inadequate coping strategies and only 9% of them are falling under adequate level of coping strategies. The study about the level of psychological well being among the primary caregivers majority of them 48% are having inadequate psychological wellbeing, 46% them are having moderate level of wellbeing and only 6% of them are having adequate level of psychological wellbeing. The relationship among the level of perceived family burden, coping strategies and psychological well being among the primary caregivers reported that the correlation between family burden and coping strategies indicated the moderate, negative(0.43) and significant correlation and it shows that when the burden increases their coping level will decreases. The correlation between the family burden and well being (0.48) showed that the moderate, negative and significant correlation and it shows that when the burden increases their well being decreases. The correlation between the coping strategies and psychological well being (0.51) indicates the moderate, positive and significant correlation and it shows that when the coping strategies increases their well being also increases. The association between the level of perceived family burden and demographic variables shows that age (χ2=8.97), duration of illness (χ2=7.69), and relationship with the patients (χ2=7.44) are significantly associated with their level of burden. More aged, less income, duration of illness and wife group are having more burden than others. In the midst of the association between the level of coping strategies and demographic variables shows that age (χ2=8.45), marital status (χ2=6.45), and health status (χ2=5.95), are significantly associated with their level of coping. Less aged, married and healthy people are having adequate level of coping strategies. The association between the level of psychological well being and demographic variables shows that duration of illness (χ2=7.34), and health status(χ2=6.66), are significantly associated with their level of wellbeing. Less duration of illness and healthy status persons are having adequate level of psychological well being. The following recommendations were made based on the findings of the study:- A similar study can be conducted with large sample for generalization. A comparative study can be done at rural and urban areas. A comparative study can be done among caregivers of chronic schizophrenia and other psychiatric illnesses. A comparative study can be done among caregivers of chronic schizophrenia patients in different hospitals. A similar study can be done to see the effectiveness of structured teaching programme about family burden, coping strategies and psychological wellbeing. An experimental study using pre-test, post-test control group design can be planned to find strategies to provide adaptive coping methods for caregivers of mentally ill patients in Indian setting.

Item Type: Thesis (Masters)
Uncontrolled Keywords: Perceived Family Burden; Coping Strategies; Psychological Well-Being; Primary Caregivers; Chronic Schizophrenia Patients; Madurai
Subjects: NURSING > Psychiatric Nursing
Depositing User: Ramakrishnan J
Date Deposited: 25 Jan 2018 10:26
Last Modified: 25 Jan 2018 10:26
URI: http://repository-tnmgrmu.ac.in/id/eprint/5556

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